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can stress exacerbate the CD

Question:

When I was finally diagnosed I went through a period of  relief, at least I knew what was wrong.  I knew that I would be in for a rough time but at least I knew who the devil was.  I was already expeeriencing some of the side effects which I later found weree typically part of the chrons package.  The person who doesn’t have a definite diagnoses may be in greater need of help than the rest of us. Paul – Hide quoted text — Show quoted text – because my doctor is giving me %90 that it is, shes almost certain of it, although they still have to continue running test, besides that she was the one who told me to join a support group…but if its a problem then I will definately stop posting. Was just curious. I don’t think I’d post so many posts like you have out of fear of embarrassment. Imagine if after talking about your flare ups and other such details, that you come to find out you don’t have it. :) I’d feel pretty silly. brad if i had lots of questions and said a lot and then found out i didnt have it..i wouldnt be embarrassed..i would be thrilled that i didnt have it!..obviously she has something wrong…and she needs support…we are a support group…. annie

Response:

. – Hide quoted text — Show quoted text – How come the posts are not being read carefully? That there’s no critical attitude towards questions and answers. A lot of questions are being asked twice in one or two days: people with answers don’t want to write it down again. In itself it’s okay to keep on asking questions. But it may demotivate people who have provided elaborate answers, and done their best for others, to see that their answers are not even being read by the ones who stated the questions. Another thing is there are so many flyers and informational posters in hospitals (at least, in the Netherlands), that give all the answers to these questions, that provide a braod basic knowledge on the topics posted. Read things like that first, then come and debate about it, or ask for depth info. It’ll save time too. You’re right, and I answered some of janet’s first posts, until I realized that every thought that popped into her head would be asked.

exactly, when it is like this, it is as if the posters are acting like a machine just posting messages. bam, another one, bam another one, bam another one, the one before having been forgotten completely. But my primary concern is with janet’s current situation. She writes about surgeries like she’s seriously considering them, she has been on IBD medications, she takes vicoden for pain control of pain that shoots down her leg. She is concerned over every little detail, sex, exercise, stress, drinking, smoking, etc. She even seems to be losing jobs because she tells them she has IBD. Her mental stability worries me, but the biggest thing is, she hasn’t been diagnosed with an IBD. So why did her doctor put her on IBD medication? Why is she telling employers she has it? Why is she drinking and smoking? Her whole situation troubles me and I think it’s a lot deeper than presented. So my questioning wasn’t so much to tell her to stop posting things that are easily learned with a simple search on the web, though you are right.

you are right i think. My questioning is just to learn more about her strange situation so I can understand it.

hypochondria? So many details about her story just don’t add up. It doesn’t sound like she has proper guidance and I’d hate to see her life spiral out of control because of it.

greetings, patricia

Response:

It’s not a problem. Brad has apparently made it his selfless mission in life to be an ass to vulnerable people. In my opinion, this person Brad was being critical, and therefore asking a question. What’s wrong with that?

When someone decides they don’t like you, everything you do is suspect, and you are guilty until proven innocent. How come the posts are not being read carefully? That there’s no critical attitude towards questions and answers. A lot of questions are being asked twice in one or two days: people with answers don’t want to write it down again. In itself it’s okay to keep on asking questions. But it may demotivate people who have provided elaborate answers, and done their best for others, to see that their answers are not even being read by the ones who stated the questions. Another thing is there are so many flyers and informational posters in hospitals (at least, in the Netherlands), that give all the answers to these questions, that provide a braod basic knowledge on the topics posted. Read things like that first, then come and debate about it, or ask for depth info. It’ll save time too.

You’re right, and I answered some of janet’s first posts, until I realized that every thought that popped into her head would be asked. But my primary concern is with janet’s current situation. She writes about surgeries like she’s seriously considering them, she has been on IBD medications, she takes vicoden for pain control of pain that shoots down her leg. She is concerned over every little detail, sex, exercise, stress, drinking, smoking, etc. She even seems to be losing jobs because she tells them she has IBD. Her mental stability worries me, but the biggest thing is, she hasn’t been diagnosed with an IBD. So why did her doctor put her on IBD medication? Why is she telling employers she has it? Why is she drinking and smoking? Her whole situation troubles me and I think it’s a lot deeper than presented. So my questioning wasn’t so much to tell her to stop posting things that are easily learned with a simple search on the web, though you are right. My questioning is just to learn more about her strange situation so I can understand it. So many details about her story just don’t add up. It doesn’t sound like she has proper guidance and I’d hate to see her life spiral out of control because of it.

Response:

Hi Janet: Sorry, do hear about your sister.  Pour your heart out into this group. We are hear to listen.  Listen to your body, only you know how it feels. just found out my sister/best friend might have ovarian cancer, and now I am more stress than before, mourning myself, now my sister/bestfriend.

ditto to margie and nina u stay here and say whatever u need to ….we are here for you annie

Response:

Janet the best thing you can do for yourself is to continue talking and asking questions both here, your dr’s and with your family.  I hope that the possible diagnoses are wrong and things improve for both you and your sister.  I think hearing news like this would thrill most on this group!  So try to just take it one day at a time and try not to let stress get out of control on you.  I know in stress my body reacts badly to it.  I don’t post as often as I used to but I do usually check in to see how my "friends" are doing, new and old! :)  Like Annie, I have made good friends on the group and in real life, actually Annie and I met up a few years ago with another member of the group who I talk to all the time who lives a couple hours from me.  So stick around!  UM MOM Susan

– Hide quoted text — Show quoted text – just found out my sister/best friend might have ovarian cancer, and now I am more stress than before, mourning myself, now my sister/bestfriend. hi janet sorry to hear about your sister…maybe its not..she is in my prayers…i lost my sister in a car crash 24 years ago in august..my heart is with you….your cd wont actually get worse i dont think..but you will feel it more..know what i mean? all you can do is be there for her…u take care..love annie

Response:

because my doctor is giving me %90 that it is, shes almost certain of it, although they still have to continue running test, besides that she was the one who told me to join a support group…but if its a problem then I will definately stop posting. Was just curious. I don’t think I’d post so many posts like you have out of fear of embarrassment. Imagine if after talking about your flare ups and other such details, that you come to find out you don’t have it. :) I’d feel pretty silly.

brad if i had lots of questions and said a lot and then found out i didnt have it..i wouldnt be embarrassed..i would be thrilled that i didnt have it!..obviously she has something wrong…and she needs support…we are a support group…. annie

Response:

- Hide quoted text — Show quoted text – It’s not a problem. Brad has apparently made it his selfless mission in  life to be an ass to vulnerable people. In my opinion, this person Brad was being critical, and therefore asking a question. What’s wrong with that? How come the posts are not being read carefully? That there’s no critical attitude towards questions and answers. A lot of questions are being asked twice in one or two days: people with answers don’t want to write it down again. In itself it’s okay to keep on asking questions. But it may demotivate people who have provided elaborate answers, and done their best for others, to see that their answers are not even being read by the ones who stated the questions. Another thing is there are so many flyers and informational posters in hospitals (at least, in the Netherlands), that give all the answers to these questions, that provide a braod basic knowledge on the topics posted. Read things like that first, then come and debate about it, or ask for depth info. It’ll save time too. greetings, Patricia

patricia sometimes even if one reads something in one place…they still need to hear it again…sometimes it just helps to talk…thats a great stress reliever..i think thats why often people ask what might seem "obvious"..they need to hear a voice…and if thats what they need..they should be welcome to it annie

Response:

just found out my sister/best friend might have ovarian cancer, and now I am more stress than before, mourning myself, now my sister/bestfriend.

hi janet sorry to hear about your sister…maybe its not..she is in my prayers…i lost my sister in a car crash 24 years ago in august..my heart is with you….your cd wont actually get worse i dont think..but you will feel it more..know what i mean? all you can do is be there for her…u take care..love annie

Response:

because my doctor is giving me %90 that it is, shes almost certain of it, although they still have to continue running test, besides that she was the one who told me to join a support group…but if its a problem then I will definately stop posting.

hey there you stay on here where u can get teh support you need..have questions answered etc etc..ok? if someone doesnt understand that, THEY have the problem..not you..you are wanted and needed and loved…and cared about…u stay right here where we can all be supportive of you… funny..my doctor advised me to NOT join a group..(but that was years ago…and he was talking about a "live group" not a newsgroup…he said (i dont have this doc anymore)"people will sit around whining and complaining and you are a positive person and dont need to be around all that"…i dont know if that would have been true in a "real"group..at least back then..maybe he knew something about the group that was in the boston area then.. but THIS group has been great…there are some…well…whom i wouldnt care to get in conversations with "live"…there are people who disagree…people who seem rather "fanatical" to me…but i can ignore them on here and simply respond to people i like(which u cant do in a live group)..and i have made some actual friends on here too..both online friends and "live" friends.. this is a great place janet…dont let anyone push u away from here… love annie

Response:

– Hide quoted text — Show quoted text – It’s not a problem. Brad has apparently made it his selfless mission in life to be an ass to vulnerable people. In my opinion, this person Brad was being critical, and therefore asking a question. What’s wrong with that? Had that post been taken out of the context’s of Brad’s posting history, I might not have called him an ass. Given, though, his post the other day that amounted, essentially, to "Life’s a bitch, suck it up" it consistently follows a pattern of his rudeness and insensitivity towards the people on this group. The fact that Janet interpreted his post the same way I did – in an unwelcoming and vaguely hostile light – says more than enough; people should not be ran off from a support group because Edward can’t find better things to do with his time.

allright.

Response:

It’s not a problem. Brad has apparently made it his selfless mission in life to be an ass to vulnerable people. In my opinion, this person Brad was being critical, and therefore asking a question. What’s wrong with that?

Had that post been taken out of the context’s of Brad’s posting history, I might not have called him an ass. Given, though, his post the other day that amounted, essentially, to "Life’s a bitch, suck it up" it consistently follows a pattern of his rudeness and insensitivity towards the people on this group. The fact that Janet interpreted his post the same way I did – in an unwelcoming and vaguely hostile light – says more than enough; people should not be ran off from a support group because Edward can’t find better things to do with his time. I’d go ahead and dissect his post line-by-line for you to highlight each notable point of jackassness, but I killfilled him after seeing his post to Janet, and OE deletes all posts by someone you killfile, including already-downloaded posts.

Response:

thanks :)

Response:

technically it would be my doctor not me, I am only going by what my doctor is telling me

Response:

It’s not a problem.

The only problem I can see is that you are suffering, and you need support. Well, we just happen to be a support group, so don’t you dare stop posting. Don’t let people steal from you whatever small joy or comfort you may find in life.  Hang on to it. We are here for you.  I am so sorry you are in such pain.  Feel free, that’s what we’re here for.   Always,   Margie CD Class of 67 UC Class of 96

Response:

Was just curious. I don’t think I’d post so many posts like you have out of fear of embarrassment. Imagine if after talking about your flare ups and other such details, that you come to find out you don’t have it. :) I’d feel pretty silly.

After all you have just said, Brad, you SHOULD feel VERY foolish.  Who are you to tell someone what not to post about?  If she or anyone wants to post what they are feeling, that is the purpose of this ng!  Where else can people get more information, emotional support and friendship than right here.  And I pray that after all her fears and such have been expressed here, the best news we can all get from her is that all is well.  No cancer and nothing life-threatening.  Try to put yourself in her shoes for just a minute and imagin what a day is like for her.  

Response:

You just go right on posting Princess.   Personally I would like to know how things are going for you.  I and I am sure other people as well are glad you found us.  We’re not glad you’re sick, just glad you’re here.     Margie CD Class of 67 UC Class of 96

Response:

thank you margie :)

Response:

Hi Janet: Sorry, do hear about your sister.  Pour your heart out into this group. We are hear to listen.  Listen to your body, only you know how it feels. – Hide quoted text — Show quoted text – just found out my sister/best friend might have ovarian cancer, and now I am more stress than before, mourning myself, now my sister/bestfriend.

Response:

It’s not a problem. Brad has apparently made it his selfless mission in life to be an ass to vulnerable people.

In my opinion, this person Brad was being critical, and therefore asking a question. What’s wrong with that? How come the posts are not being read carefully? That there’s no critical attitude towards questions and answers. A lot of questions are being asked twice in one or two days: people with answers don’t want to write it down again. In itself it’s okay to keep on asking questions. But it may demotivate people who have provided elaborate answers, and done their best for others, to see that their answers are not even being read by the ones who stated the questions. Another thing is there are so many flyers and informational posters in hospitals (at least, in the Netherlands), that give all the answers to these questions, that provide a braod basic knowledge on the topics posted. Read things like that first, then come and debate about it, or ask for depth info. It’ll save time too. greetings, Patricia

Response:

because my doctor is giving me %90 that it is, shes almost certain of it, although they still have to continue running test, besides that she was the one who told me to join a support group…but if its a problem then I will definately stop posting.

Response:

because my doctor is giving me %90 that it is, shes almost certain of it, although they still have to continue running test, besides that she was the one who told me to join a support group…but if its a problem then I will definately stop posting.

It’s not a problem. Brad has apparently made it his selfless mission in life to be an ass to vulnerable people. Ignore the bad apple in the bunch.

Response:

because my doctor is giving me %90 that it is, shes almost certain of it, although they still have to continue running test, besides that she was the one who told me to join a support group…but if its a problem then I will definately stop posting.

Was just curious. I don’t think I’d post so many posts like you have out of fear of embarrassment. Imagine if after talking about your flare ups and other such details, that you come to find out you don’t have it. :) I’d feel pretty silly.

Response:

just found out my sister/best friend might have ovarian cancer, and now I am more stress than before, mourning myself, now my sister/bestfriend.

Response:

just found out my sister/best friend might have ovarian cancer, and now I am more stress than before, mourning myself, now my sister/bestfriend.

I wonder why you have so many questions about something that, as far as I know, you haven’t been diagnosed with? I hope with this next colonoscopy you get a definitive answer.

Response:

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