Act Acting » Acting Jobs » uh, is Montel in here?

uh, is Montel in here?

Question:

d…@cheetah.net wrote in message > > Montel is show biz, glitz, hyperbole, excesses, > and the list goes on. I don’t see him doing any > damage but to his own image.

*snip* > He does make one strong contribution, that of > taking a direct course of action and begin managing > the MS before it manages him.

  I resent his tone and attitude when he addresses the camera and says  "I refuse to let MS define me". (well, good for *you*, Montel.) It implies, at least to me, that he considers others with MS as "letting it define them", that we’re all a bunch of sad sack worrywart malingerers going around beating our MS drums. I don’t care for his arrogance. Just because others have to deal with it a bit more carefully and extensively doesn’t mean they are being ‘defined’ by MS. It can’t help but alter the lives of many of us, it can’t be ignored, and must be addressed on a daily basis, and for those who can’t walk on their own, much less run a marathon, YES, it tends to define a person to some degree. Montel’s famous positive-thinking is a good, helpful assist in *any* person — ill or not, but it is not a cure-all. He just has a little … belligerence in his voice that seems to be directed not at MS, but at anyone with MS who isn’t hitting the weights or doing jumping-jacks like he is. I appreciate his contribution to awareness and treatment, but all that’s for nothing, if he doesn’t acknowledge that not all those with MS will have his ability to be so bouncy and pro-active. He’s not the Face of MS, he’s the face of *his* MS.

Response:

On Mon, 29 Apr 2002 02:58:23 GMT, "njs" <elevat…@giveadamn.com> wrote: >you know, you can tell I have cognitive issues, I just re-read part of my >original post after reading your reply and it barely made sense.  The >Monster shows itself. lol >I’m glad to see that something finally got through to him.  I wanted someone >to just come out and say, though, that there is a large group of sufferers >who fall (no pun intended) between Montel and say, Richard Pryor. >nancy

Nancy, Your post made sense to me. What does that say? :) Donn

Response:

But..being a host of that show..  Like being envious of the prostitute who has nice clothes.  Yes I’d like the financial well being that Montel has (assuming he DOES!).  The job? yuck.. — Laura Queen of the Mercury Amalgam Aspartame Multiple Sclerosis Society "njs" <elevat…@giveadamn.com> wrote in message

news:YUoz8.916$Wd5.44840@newsread1.prod.itd.earthlink.net… > <hant…@netins.net> wrote in message

news:aajlhj$f99$1@ins22.netins.net… – Hide quoted text — Show quoted text -> >  Well put njs but, I will admit that I’m pretty envious of his life. How > > great it would be to have help & medical coverage. :-( > >      Kathy K. =^..^= > you got me, some of it IS envy, on my part. It’d be lovely not to worry > about missing work, and how nice would it be to just fly out to see any > neuro I please?  sigh. I was trying not to bum myself out worse than I > already am, this month. > :)

Response:

- Hide quoted text — Show quoted text -On Mon, 29 Apr 2002 01:57:22 GMT, "njs" <elevat…@giveadamn.com> wrote: >Watching Larry King, and I’m not annoyed like I thought I would be. Montel >must be reading my posts, because he addressed the very issue that pisses me >off — how people tell him he’s doing a disservice by acting like MS doesn’t >affect him. Seriously, it does seem as if I’m not the only one who has taken >issue with his "all you need to do is exercise like me" evangelism. Perhaps, >if I only worked 2 days a week like him, I could spend the other 5 doing >exercise and recovering from having done it, instead of trying to hang on >and get my 5 days/40 hours in without being too ill and without pacing >myself carefully. As a person who lives alone, I find it very difficult to >handle home, work and shopping, cleaning, etc and then try to do a workout >that heats me up and unhinges me. >It’s validating to see a panel of people with different kinds of MS >problems, who "look good" according to Larry, and each mentions how much >they think about it and how you can look good and feel "wrong". >Of course, Sunday evening at 8 pm, I"m sure no one I know will be watching! >nancy

Montel is show biz, glitz, hyperbole, excesses, and the list goes on. I don’t see him doing any damage but to his own image. At some point, and pray that it does not happen big, the MS, he suggests he can control, will slip silently into his public life. Once there, he has to decide if he wants to keep up the ruse to maintain the public persona of a man who can beat the odds. I hope he does beat the odds. Of course odds have little to do with the actual math of it all. He does make one strong contribution, that of taking a direct course of action and begin managing the MS before it manages him.

Response:

drdata1…@aol.comDISNEY (Mark Blei) > What is montell doing wrong even if he is playing it down  .,.remember I’ve > only know I had this for less then two weeks so I’m ignorent  so please dont > blast me just tell me. > Mark  

 If you do not know the answer to that question, lets pray that you never do. Rob

Response:

<hant…@netins.net> wrote in message news:aajlhj$f99$1@ins22.netins.net…

   he’s got a lot of advantages that the average working person with > MS > > does not, his life is eased by the type of job he has, and the type of > money > > he has. This is not envy, just plain speaking. >  Well put njs but, I will admit that I’m pretty envious of his life. How > great it would be to have help & medical coverage. :-( >      Kathy K. =^..^=

you got me, some of it IS envy, on my part. It’d be lovely not to worry about missing work, and how nice would it be to just fly out to see any neuro I please?  sigh. I was trying not to bum myself out worse than I already am, this month. :)

Response:

>You arent. I was diagnosed with severe sleep apnea in 94 and after >exhaustive checking and testing, it was found I am not able to be treated

Uhh I have been told that even the most serious apnea can be greatly helped by having a simple and I know it’s not pleasant but a trachiostomy a hole in your neck that al;lows you to breath I know this because I have apnea as well; and know twom people who couldnt be helped by a machine and had to eventuall;y have it..it’s a little platic button on there collar they open at night and the dont snore >our place, I am tempted to go to bed at 10PM and set the alarm for 8AM just >so they can see the blood running out of my eyes

Dude..seriously blood runs down your eyes ..like tears?  WOW M

Response:

"Mark Blei" <drdata1…@aol.comDISNEY> wrote in message

news:20020429175758.00586.00008500@mb-md.aol.com… > >You arent. I was diagnosed with severe sleep apnea in 94 and after > >exhaustive checking and testing, it was found I am not able to be treated > Uhh I have been told that even the most serious apnea can be greatly helped by > having a simple and I know it’s not pleasant but a trachiostomy a hole in

your It isnt true unfortunately. There are about 8% of people worldwide that dont get any benefit from a tracheostomy for differing reasons. Mine has already been investigated. > neck that al;lows you to breath I know this because I have apnea as well; and > know twom people who couldnt be helped by a machine and had to eventuall;y have > it..it’s a little platic button on there collar they open at night and the dont > snore

Unfortunately it isnt as simple as that either. You have to have your mind on what you are doing with a tracheostomy because you can drown if you dont and often there are other health issues caused by one but generally most people get benefit from them. > >our place, I am tempted to go to bed at 10PM and set the alarm for 8AM just > >so they can see the blood running out of my eyes > Dude..seriously blood runs down your eyes ..like tears?  WOW > M

Yep. Oxygen starvation headaches. UM.

Response:

In article <20020429175338.00586.00008…@mb-md.aol.com>, drdata1…@aol.comDISNEY says… – Hide quoted text — Show quoted text ->>I wrote the producers of Montel’s show a while ago and told them that he and >>they needed a reality check, and that they were potentially hurting good >>people >>by presenting the world with an unrealistic model of how MS affects people >>and >>their ability to do their jobs or to care for themselves and their families. >>Sounds like maybe I wasn’t the only one to say so… otherwise, there’s no >>bloody way Montel would ever have consented to appear with people for whom MS >What is montell doing wrong even if he is playing it down  .,.remember I’ve >only know I had this for less then two weeks so I’m ignorent  so please dont >blast me just tell me.

No blast, just a word, Mark… What Montel’s doing (generally) is to imply to the world that people with MS can *all* function as well as he does, if only they believed in themselves as much as he does, and tried as hard as he does.  In a word, that’s bullshit. A lot of people with MS look great and feel like shit… some of these can make the grade in terms of organizing an active life, but many can’t. And let’s not forget how many people with MS are far too disabled for *any* kind of work or "active lifestyle". There’s nothing wrong with Montel presenting himself as being healthy despite his MS, as long as that’s the truth of the matter, but it’s not fair to make it appear as though he’s found some secret to making MS liveable… all he’s done is to be lucky in how MS has treated him so far. I hope the luck keeps up, but I also hope he begins to portray the disease as it is in all its many guises, and not just the one he happens to live with. — Michael <muirh…@island.net>   – Peace is not the absence of war, but the universal presence of justice.

Response:

What Montel is doing (and what a lot of MS’rs and non MS’rs also do)  is possibly causing you to feel the need to be so secretive.  And being so secretive *may*  be causing your ‘anxiety’ problem – or at least is contributing to your anxiety. — Laura Queen of the Mercury Amalgam Aspartame Multiple Sclerosis Society "Mark Blei" <drdata1…@aol.comDISNEY> wrote in message

news:20020429175338.00586.00008496@mb-md.aol.com… – Hide quoted text — Show quoted text -> >I wrote the producers of Montel’s show a while ago and told them that he and > >they needed a reality check, and that they were potentially hurting good > >people > >by presenting the world with an unrealistic model of how MS affects people > >and > >their ability to do their jobs or to care for themselves and their families. > >Sounds like maybe I wasn’t the only one to say so… otherwise, there’s no > >bloody way Montel would ever have consented to appear with people for whom MS > Uh Nancy I’m totally new to this but I (similarly to I guess Montel) and I’m > not up on montel have a decent case of MS and you cant tell ( cept I just > shaved my head in an effort to keep it a bit cooler… seems to help with the > sweating BTW) > And I work 60 hours a week.. I work 60 hours a week and beg for gods eternal; > mercy to allow me to make it out of bed every day or just fucking give me > something that looks bad enough so if I walked into my office they would say > Eww..Go home. but I do get out and I do work > I guess I dont know what I’m saying.. I suffer alot ..like hell.. in that I’m > exsauhested and for some reason the good lord has seen fit to give me an > increadble anxiety problem and some chroinic pain  on top of the whole shebang. >  But My Co workers and yes I havent told anyone on legal advice. Couldnt tell. > They kbow somethongs wrong but I’m weird enough that they just cant place it > but to tell the truth I see no reason to tell anyone even if the legal issue > werent there.  I get through 90% of my time walking around not looking like i’m > sick. How I feel is diffrent then how I look but I dont look sick so I dont > advertise it and even people who know about my MS say you look ok and I say I > am ok.  In my mind I am at least.. I dont feel great but I’m walking and > talking and occasionally coherent:) and I have a job which sucks the life out > of me but pays me decent and I guess by general stanards I am ok.  I see my > doctor I do what I can to manage my symtoms and I guess if I have a serious > progression that I cant play off . I’ll deal with that then. Meanwhile I tell > people I have a bad back and if I have to limp or use a cane or I take a wrong > step and take a spill  I say something like "fucking back just went out like a > bolt". and no ones the wiser.. > Now I’m also relativly well respected and well known and to people who do wat I > do ( not many)  I’m somewhat media known..but I wouldnt say anything ..even if > I seriously progressed I would just play it off or lie or drop away and deal > privatly. >  I was told there is so much misunderstanding of the diseasse that you should > lay it off As much as you can and not tell people .  Both Doctors and Lawyers > have given me this advice  .  And when I see whats probably the most > outstanding media person with MS  even if he’s fictional the president in west > wing doesnt dwell on MS at all.  it was a subject .. it came up and it’s > basically history.  What wrong with downplaying it?  It sucks and a million > diffrent things can happen whats wrong with saying yea it sucks but I’m doing > allright. or even .. Dont want to talk about it  next subject .  Hell most > peole dont really want to hear your problems anyway I have found if they did I > wouldnt pay a damn therapist to listen to me bitch. > What is montell doing wrong even if he is playing it down  .,.remember I’ve > only know I had this for less then two weeks so I’m ignorent  so please dont > blast me just tell me. > Mark > Best, > Mark > TDC SCHMOOPIE Ruler of Epcot Futureworld Nerds

Response:

When I wrote to Montel’s producers, I told them that they were doing a disservice to people who were seriously disabled by MS but still hard at work doing their jobs… that those people would be seen as "doing so well, just like Montel," and that if they became sicker, they would be seen as malingerers. They wrote back to tell me that Montel was only interested in presenting "success stories" where MS was concerned. *I* wrote back one more time to tell them that presenting only success stories about MS was like presenting only victorious bomber pilots emerging from their aircraft as television coverage of a war.   People know it perfectly well in the backs of their minds, but they never quite understand what a war is like until they start seeing dismembered bodies on the telly. And make no mistake: the fight to end MS is a war. — Michael <muirh…@island.net>   – Peace is not the absence of war, but the universal presence of justice. In article <aaksek$bglb…@ID-95032.news.dfncis.de>, "Mona" says… – Hide quoted text — Show quoted text ->What Montel is doing (and what a lot of MS’rs and non MS’rs also do)  is >possibly causing you to feel the need to be so secretive.  And being so >secretive *may*  be causing your ‘anxiety’ problem – or at least is contributing >to your anxiety. >– >Laura >Queen of the Mercury Amalgam Aspartame Multiple Sclerosis Society >"Mark Blei" <drdata1…@aol.comDISNEY> wrote in message >news:20020429175338.00586.00008496@mb-md.aol.com… >> >I wrote the producers of Montel’s show a while ago and told them that he and >> >they needed a reality check, and that they were potentially hurting good >> >people >> >by presenting the world with an unrealistic model of how MS affects people >> >and >> >their ability to do their jobs or to care for themselves and their families. >> >Sounds like maybe I wasn’t the only one to say so… otherwise, there’s no >>>bloody way Montel would ever have consented to appear with people for whom MS >> Uh Nancy I’m totally new to this but I (similarly to I guess Montel) and I’m >> not up on montel have a decent case of MS and you cant tell ( cept I just >> shaved my head in an effort to keep it a bit cooler… seems to help with the >> sweating BTW) >> And I work 60 hours a week.. I work 60 hours a week and beg for gods eternal; >> mercy to allow me to make it out of bed every day or just fucking give me >> something that looks bad enough so if I walked into my office they would say >> Eww..Go home. but I do get out and I do work >> I guess I dont know what I’m saying.. I suffer alot ..like hell.. in that I’m >> exsauhested and for some reason the good lord has seen fit to give me an >> increadble anxiety problem and some chroinic pain  on top of the whole >shebang. >>But My Co workers and yes I havent told anyone on legal advice. Couldnt tell. >> They kbow somethongs wrong but I’m weird enough that they just cant place it >> but to tell the truth I see no reason to tell anyone even if the legal issue >> werent there.  I get through 90% of my time walking around not looking like >i’m >> sick. How I feel is diffrent then how I look but I dont look sick so I dont >> advertise it and even people who know about my MS say you look ok and I say I >> am ok.  In my mind I am at least.. I dont feel great but I’m walking and >> talking and occasionally coherent:) and I have a job which sucks the life out >> of me but pays me decent and I guess by general stanards I am ok.  I see my >> doctor I do what I can to manage my symtoms and I guess if I have a serious >> progression that I cant play off . I’ll deal with that then. Meanwhile I tell >> people I have a bad back and if I have to limp or use a cane or I take a >wrong >>step and take a spill  I say something like "fucking back just went out like a >> bolt". and no ones the wiser.. >> Now I’m also relativly well respected and well known and to people who do wat >I >>do ( not many)  I’m somewhat media known..but I wouldnt say anything ..even if >> I seriously progressed I would just play it off or lie or drop away and deal >> privatly. >>  I was told there is so much misunderstanding of the diseasse that you should >> lay it off As much as you can and not tell people .  Both Doctors and Lawyers >> have given me this advice  .  And when I see whats probably the most >>outstanding media person with MS  even if he’s fictional the president in west >> wing doesnt dwell on MS at all.  it was a subject .. it came up and it’s >> basically history.  What wrong with downplaying it?  It sucks and a million >> diffrent things can happen whats wrong with saying yea it sucks but I’m doing >> allright. or even .. Dont want to talk about it  next subject .  Hell most >>peole dont really want to hear your problems anyway I have found if they did I >> wouldnt pay a damn therapist to listen to me bitch. >> What is montell doing wrong even if he is playing it down  .,.remember I’ve >> only know I had this for less then two weeks so I’m ignorent  so please dont >> blast me just tell me. >> Mark >> Best, >> Mark >> TDC SCHMOOPIE Ruler of Epcot Futureworld Nerds

Response:

Wow….  that is one of the best statements I’ve read in a long while, UM! You said a mouthful, there! I hope you don’t mind, but I’m gonna snag that… I have a couple of friends that I would like to send it to.. I will give proper credit of course! Hugs, Tee "Uninformed Medically" <madma…@thishastoberemoved.ozbytes.net.au> wrote in message news:3cccc27d$0$15474$afc38c87@news.optusnet.com.au… I believe sickness like MS, Parkinsons and so on to a healthy person are like faith to an agnostic. To those who dont need proof, no proof is necessary. To those who dont believe, no proof is possible.  UM.

Response:

AMEN, njs! 5 days to regroup makes a major difference!  As does the money that allows those 5 days! Hugs, Tee "njs" <elevat…@giveadamn.com> wrote in message

news:sK2z8.12140$iU4.1054346@newsread2.prod.itd.earthlink.net… – Hide quoted text — Show quoted text -> "jennifer paszkat" <jpasz…@telus.net> wrote in message > news:9y2z8.4874$vd.528099@news2.telusplanet.net… > > just as a side note from someone who has been involved in acting and > > t.v..the 2 days a week he may work probably add up to 30 hour days. It’s a > > lot tougher than one thinks it is. > Exactly — and he has the other 5 days of the week to recover, has people > who cook for him, watch his kids, clean his house, etc, while he regroups > and finds time to get a workout in.  My problem is not so much the inability > to work out as it is the inability to bounce back from what working out does > to me. Requires lots of cooling down and much rest to get the coordination > back.  he’s got a lot of advantages that the average working person with MS > does not, his life is eased by the type of job he has, and the type of money > he has. This is not envy, just plain speaking.

Response:

Sure! Go for it! I think what happened was I pulled my foot out of my mouth to change to the other one and in between slipped up and had a profound moment! (still grinning) "Tee" <tchap…@nospam.net> wrote in message

news:5riz8.12531$a56.222906473@twister2.starband.net… – Hide quoted text — Show quoted text -> Wow….  that is one of the best statements I’ve read in a long while, UM! > You said a mouthful, there! > I hope you don’t mind, but I’m gonna snag that… I have a couple of friends > that I would like to send it to.. I will give proper credit of course! > Hugs, > Tee > "Uninformed Medically" <madma…@thishastoberemoved.ozbytes.net.au> wrote in > message news:3cccc27d$0$15474$afc38c87@news.optusnet.com.au… > I believe sickness like MS, Parkinsons and so on to a healthy person are > like faith to an agnostic. To those who dont need proof, no proof is > necessary. To those who dont believe, no proof is possible. >  UM.

Response:

>I wrote the producers of Montel’s show a while ago and told them that he and >they needed a reality check, and that they were potentially hurting good >people >by presenting the world with an unrealistic model of how MS affects people >and >their ability to do their jobs or to care for themselves and their families. >Sounds like maybe I wasn’t the only one to say so… otherwise, there’s no >bloody way Montel would ever have consented to appear with people for whom MS

Uh Nancy I’m totally new to this but I (similarly to I guess Montel) and I’m not up on montel have a decent case of MS and you cant tell ( cept I just shaved my head in an effort to keep it a bit cooler… seems to help with the sweating BTW) And I work 60 hours a week.. I work 60 hours a week and beg for gods eternal; mercy to allow me to make it out of bed every day or just fucking give me something that looks bad enough so if I walked into my office they would say Eww..Go home. but I do get out and I do work   I guess I dont know what I’m saying.. I suffer alot ..like hell.. in that I’m exsauhested and for some reason the good lord has seen fit to give me an increadble anxiety problem and some chroinic pain  on top of the whole shebang.  But My Co workers and yes I havent told anyone on legal advice. Couldnt tell. They kbow somethongs wrong but I’m weird enough that they just cant place it but to tell the truth I see no reason to tell anyone even if the legal issue werent there.  I get through 90% of my time walking around not looking like i’m sick. How I feel is diffrent then how I look but I dont look sick so I dont advertise it and even people who know about my MS say you look ok and I say I am ok.  In my mind I am at least.. I dont feel great but I’m walking and talking and occasionally coherent:) and I have a job which sucks the life out of me but pays me decent and I guess by general stanards I am ok.  I see my doctor I do what I can to manage my symtoms and I guess if I have a serious progression that I cant play off . I’ll deal with that then. Meanwhile I tell people I have a bad back and if I have to limp or use a cane or I take a  wrong step and take a spill  I say something like "fucking back just went out like a bolt". and no ones the wiser.. Now I’m also relativly well respected and well known and to people who do wat I do ( not many)  I’m somewhat media known..but I wouldnt say anything ..even if I seriously progressed I would just play it off or lie or drop away and deal privatly.  I was told there is so much misunderstanding of the diseasse that you should lay it off As much as you can and not tell people .  Both Doctors and Lawyers have given me this advice  .  And when I see whats probably the most outstanding media person with MS  even if he’s fictional the president in west wing doesnt dwell on MS at all.  it was a subject .. it came up and it’s basically history.  What wrong with downplaying it?  It sucks and a million diffrent things can happen whats wrong with saying yea it sucks but I’m doing allright. or even .. Dont want to talk about it  next subject .  Hell most peole dont really want to hear your problems anyway I have found if they did I wouldnt pay a damn therapist to listen to me bitch. What is montell doing wrong even if he is playing it down  .,.remember I’ve only know I had this for less then two weeks so I’m ignorent  so please dont blast me just tell me. Mark   Best, Mark TDC SCHMOOPIE Ruler of Epcot Futureworld Nerds

Response:

"njs" <elevat…@giveadamn.com> wrote in message

news:sK2z8.12140$iU4.1054346@newsread2.prod.itd.earthlink.net… – Hide quoted text — Show quoted text -> "jennifer paszkat" <jpasz…@telus.net> wrote in message > news:9y2z8.4874$vd.528099@news2.telusplanet.net… > > just as a side note from someone who has been involved in acting and > > t.v..the 2 days a week he may work probably add up to 30 hour days. It’s a > > lot tougher than one thinks it is. > Exactly — and he has the other 5 days of the week to recover, has people > who cook for him, watch his kids, clean his house, etc, while he regroups > and finds time to get a workout in.  My problem is not so much the inability > to work out as it is the inability to bounce back from what working out does > to me. Requires lots of cooling down and much rest to get the coordination > back.  he’s got a lot of advantages that the average working person with MS > does not, his life is eased by the type of job he has, and the type of money > he has. This is not envy, just plain speaking.

 Well put njs but, I will admit that I’m pretty envious of his life. How great it would be to have help & medical coverage. :-(      Kathy K. =^..^= — http://showcase.netins.net/web/motherearthfathersky

Response:

"njs" <elevat…@giveadamn.com> wrote in message

news:jF2z8.12126$iU4.1053572@newsread2.prod.itd.earthlink.net… > you know, you can tell I have cognitive issues, I just re-read part of my > original post after reading your reply and it barely made sense.  The > Monster shows itself. lol

Every time I read a reference to it as the MonSter, the Milton the Monster cartoon show theme goes through my head. (still grinning) UM.

Response:

"Michael" <muirh…@island.net> wrote in message

news:aaib2u01j2e@drn.newsguy.com… > I wrote the producers of Montel’s show a while ago and told them that he and > they needed a reality check, and that they were potentially hurting good people > by presenting the world with an unrealistic model of how MS affects people and > their ability to do their jobs or to care for themselves and their families.

Michael I believe sickness like MS, Parkinsons and so on to a healthy person are like faith to an agnostic. To those who dont need proof, no proof is necessary. To those who dont believe, no proof is possible. UM.

Response:

had to put in my 2 cents worth, the show was about 20 mins into it when I happened on it by flicking channels.   the thing is, where was poor Annette Funichello and Richard Pryor ? or many others that are far worse than I hope ever to be. the show had it’s merrits but I didn’t learn anything I didn’t know. i can think of other celebs who might have been better than who they had, and Montel seemed to think it was HiS SHOW !!!    guess the guy can’t help it. I do agree he does good works for the MS foundation, and does encourage awareness of MS. Joyce "njs" <elevat…@giveadamn.com> wrote in message

news:6M1z8.12773$8p3.1020284@newsread1.prod.itd.earthlink.net… – Hide quoted text — Show quoted text -> Watching Larry King, and I’m not annoyed like I thought I would be. Montel > must be reading my posts, because he addressed the very issue that pisses me > off — how people tell him he’s doing a disservice by acting like MS doesn’t > affect him. Seriously, it does seem as if I’m not the only one who has taken > issue with his "all you need to do is exercise like me" evangelism. Perhaps, > if I only worked 2 days a week like him, I could spend the other 5 doing > exercise and recovering from having done it, instead of trying to hang on > and get my 5 days/40 hours in without being too ill and without pacing > myself carefully. As a person who lives alone, I find it very difficult to > handle home, work and shopping, cleaning, etc and then try to do a workout > that heats me up and unhinges me. > It’s validating to see a panel of people with different kinds of MS > problems, who "look good" according to Larry, and each mentions how much > they think about it and how you can look good and feel "wrong". > Of course, Sunday evening at 8 pm, I"m sure no one I know will be watching! > nancy

Response:

"jennifer paszkat" <jpasz…@telus.net> wrote in message

news:9y2z8.4874$vd.528099@news2.telusplanet.net… > just as a side note from someone who has been involved in acting and > t.v..the 2 days a week he may work probably add up to 30 hour days. It’s a > lot tougher than one thinks it is.

Exactly — and he has the other 5 days of the week to recover, has people who cook for him, watch his kids, clean his house, etc, while he regroups and finds time to get a workout in.  My problem is not so much the inability to work out as it is the inability to bounce back from what working out does to me. Requires lots of cooling down and much rest to get the coordination back.  he’s got a lot of advantages that the average working person with MS does not, his life is eased by the type of job he has, and the type of money he has. This is not envy, just plain speaking.

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"njs" <elevat…@giveadamn.com> wrote in message

news:6M1z8.12773$8p3.1020284@newsread1.prod.itd.earthlink.net… > Watching Larry King, and I’m not annoyed like I thought I would be. Montel

Just looking at the guy annoys me. > must be reading my posts, because he addressed the very issue that pisses me > off — how people tell him he’s doing a disservice by acting like MS doesn’t > affect him. Seriously, it does seem as if I’m not the only one who has taken > issue with his "all you need to do is exercise like me" evangelism.

Perhaps, You arent. I was diagnosed with severe sleep apnea in 94 and after exhaustive checking and testing, it was found I am not able to be treated for it. Since that date, I cant tell you how many people, relatives and doctors and whatever, have told me all I need to do is exercise. I offered to pick up the salary of some of those who said that to me, as a form of exercise. I wasnt taken up. > if I only worked 2 days a week like him, I could spend the other 5 doing > exercise and recovering from having done it, instead of trying to hang on > and get my 5 days/40 hours in without being too ill and without pacing > myself carefully. As a person who lives alone, I find it very difficult to > handle home, work and shopping, cleaning, etc and then try to do a workout > that heats me up and unhinges me.

It has nothing to do with it the hours worked, for me. All I have to do is concentrate too long and too hard and I am off the planet again, sick, headache, etc. > It’s validating to see a panel of people with different kinds of MS > problems, who "look good" according to Larry, and each mentions how much > they think about it and how you can look good and feel "wrong".

If you saw me sitting at a bus stop and I had been sitting there 15 minutes, you could be excused for thinking I am a fat, short ugly guy with a great head of natural hair but if you saw me walking to that bus stop, you would see an occasional limp – lately the right foot feels like I broke it for some reason when I didnt – and sometimes no limp at all but you would see someone panting if he hurried and breathing hard if he didnt. According to the GP, I am a 3 in one, Sleep Apnea, CFS and MS but of course the 3rd one isnt proven yet. Now a less caring person would tell me to go exercise. I know the wife’s parents did that very thing not too many years ago, in order to be able to get back out to work, full time etc. Next time they stay over our place, I am tempted to go to bed at 10PM and set the alarm for 8AM just so they can see the blood running out of my eyes but the headache that goes with it is unbearable. They arent the most caring people about. Admittedly these days the mother in law is very sick with recently diagnosed 4 heart artery blockages after having 5 cleared 18 months ago. She is one of those types, though, that when sick, no-one in the world can possibly be more sick and she doesnt want to hear about anyone else’s problems so I dont tell her and she doesnt ask. I tried reciprocating once but my bloody annoying conscience got to me so now I treat her the way I want to be treated and hope that one day she grows the sympathy bone because she is missing it right now. Oh and to add to that, they took me aside and asked if I had noticed how the wife is earning the money and so on. No, hadnt noticed. You might wonder why I talk to them at all. I’ll get back to you when I have an answer. > Of course, Sunday evening at 8 pm, I"m sure no one I know will be watching!

A good time to exercise vigorously dont you think? (still grinning) UM.

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you know, you can tell I have cognitive issues, I just re-read part of my original post after reading your reply and it barely made sense.  The Monster shows itself. lol I’m glad to see that something finally got through to him.  I wanted someone to just come out and say, though, that there is a large group of sufferers who fall (no pun intended) between Montel and say, Richard Pryor. nancy "Michael" <muirh…@island.net> wrote in message

news:aaib2u01j2e@drn.newsguy.com… – Hide quoted text — Show quoted text -> I wrote the producers of Montel’s show a while ago and told them that he and > they needed a reality check, and that they were potentially hurting good people > by presenting the world with an unrealistic model of how MS affects people and > their ability to do their jobs or to care for themselves and their families. > Sounds like maybe I wasn’t the only one to say so… otherwise, there’s no > bloody way Montel would ever have consented to appear with people for whom MS is > a constant and unrelenting illness. > — > Michael <muirh…@island.net> >   – "Phlebotomy.  I have two arms: make mine a double. > In article <6M1z8.12773$8p3.1020…@newsread1.prod.itd.earthlink.net>, "njs" > says… > >Watching Larry King, and I’m not annoyed like I thought I would be. Montel > >must be reading my posts, because he addressed the very issue that pisses me > >off — how people tell him he’s doing a disservice by acting like MS doesn’t > >affect him. Seriously, it does seem as if I’m not the only one who has taken > >issue with his "all you need to do is exercise like me" evangelism. Perhaps, > >if I only worked 2 days a week like him, I could spend the other 5 doing > >exercise and recovering from having done it, instead of trying to hang on > >and get my 5 days/40 hours in without being too ill and without pacing > >myself carefully. As a person who lives alone, I find it very difficult to > >handle home, work and shopping, cleaning, etc and then try to do a workout > >that heats me up and unhinges me. > >It’s validating to see a panel of people with different kinds of MS > >problems, who "look good" according to Larry, and each mentions how much > >they think about it and how you can look good and feel "wrong". > >Of course, Sunday evening at 8 pm, I"m sure no one I know will be watching! > >nancy

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I wrote the producers of Montel’s show a while ago and told them that he and they needed a reality check, and that they were potentially hurting good people by presenting the world with an unrealistic model of how MS affects people and their ability to do their jobs or to care for themselves and their families. Sounds like maybe I wasn’t the only one to say so… otherwise, there’s no bloody way Montel would ever have consented to appear with people for whom MS is a constant and unrelenting illness. — Michael <muirh…@island.net>   – "Phlebotomy.  I have two arms: make mine a double. In article <6M1z8.12773$8p3.1020…@newsread1.prod.itd.earthlink.net>, "njs" says… – Hide quoted text — Show quoted text ->Watching Larry King, and I’m not annoyed like I thought I would be. Montel >must be reading my posts, because he addressed the very issue that pisses me >off — how people tell him he’s doing a disservice by acting like MS doesn’t >affect him. Seriously, it does seem as if I’m not the only one who has taken >issue with his "all you need to do is exercise like me" evangelism. Perhaps, >if I only worked 2 days a week like him, I could spend the other 5 doing >exercise and recovering from having done it, instead of trying to hang on >and get my 5 days/40 hours in without being too ill and without pacing >myself carefully. As a person who lives alone, I find it very difficult to >handle home, work and shopping, cleaning, etc and then try to do a workout >that heats me up and unhinges me. >It’s validating to see a panel of people with different kinds of MS >problems, who "look good" according to Larry, and each mentions how much >they think about it and how you can look good and feel "wrong". >Of course, Sunday evening at 8 pm, I"m sure no one I know will be watching! >nancy

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just as a side note from someone who has been involved in acting and t.v..the 2 days a week he may work probably add up to 30 hour days. It’s a lot tougher than one thinks it is.          Jen (who is very very fortunate that fatigue doesnt exist for me..the energizer bunny in person…maybe i should bottle it ;) ) "njs" <elevat…@giveadamn.com> wrote in message

news:6M1z8.12773$8p3.1020284@newsread1.prod.itd.earthlink.net… – Hide quoted text — Show quoted text -> Watching Larry King, and I’m not annoyed like I thought I would be. Montel > must be reading my posts, because he addressed the very issue that pisses me > off — how people tell him he’s doing a disservice by acting like MS doesn’t > affect him. Seriously, it does seem as if I’m not the only one who has taken > issue with his "all you need to do is exercise like me" evangelism. Perhaps, > if I only worked 2 days a week like him, I could spend the other 5 doing > exercise and recovering from having done it, instead of trying to hang on > and get my 5 days/40 hours in without being too ill and without pacing > myself carefully. As a person who lives alone, I find it very difficult to > handle home, work and shopping, cleaning, etc and then try to do a workout > that heats me up and unhinges me. > It’s validating to see a panel of people with different kinds of MS > problems, who "look good" according to Larry, and each mentions how much > they think about it and how you can look good and feel "wrong". > Of course, Sunday evening at 8 pm, I"m sure no one I know will be watching! > nancy

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Watching Larry King, and I’m not annoyed like I thought I would be. Montel must be reading my posts, because he addressed the very issue that pisses me off — how people tell him he’s doing a disservice by acting like MS doesn’t affect him. Seriously, it does seem as if I’m not the only one who has taken issue with his "all you need to do is exercise like me" evangelism. Perhaps, if I only worked 2 days a week like him, I could spend the other 5 doing exercise and recovering from having done it, instead of trying to hang on and get my 5 days/40 hours in without being too ill and without pacing myself carefully. As a person who lives alone, I find it very difficult to handle home, work and shopping, cleaning, etc and then try to do a workout that heats me up and unhinges me. It’s validating to see a panel of people with different kinds of MS problems, who "look good" according to Larry, and each mentions how much they think about it and how you can look good and feel "wrong". Of course, Sunday evening at 8 pm, I"m sure no one I know will be watching! nancy

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